This cause is very dear to our family.
In 2015, my then 5-year-old daughter Charlie was diagnosed with the kidney disorder Nephrotic Syndrome and Focal Segmental Glomerulosclerosis due to unknown causes. Numerous medications, pokes, trials, treatments and surgeries failed to help her achieve remission, and she reached end stage kidney failure in 2018, requiring dialysis.
In May of 2019, I was fortunate to donate a healthy working kidney to Charlie. She is getting stronger every day, and is returning to a more typical childhood. However, there will be more hurdles ahead, as recurrence is a possibility. There is no cure for Nephrotic Syndrome and FSGS.
NephCure Kidney International is the only organization committed exclusively to support research seeking the cause, improving the treatment and finding a cure for the potentially debilitating kidney disease FSGS and Nephrotic Syndrome.
We offer our support to Charlie and others like her in our community afflicted with this terrible disorder. Your support really makes a difference!