Patient-Centered Care for Nephrotic Syndrome

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Patient-Centered Care for Nephrotic Syndrome
Friday, October 6, 2017
7:30 AM – 4:00 PM

Carolinas HealthCare System
Suzanne Freeman Auditorium
1000 Blythe Boulevard, Charlotte, NC 28203
Activity Overview 
The symposium is dedicated to knowledge sharing around Nephrotic Syndrome (NS). This CME symposium will help further clinical practice in an area that contains large knowledge and performance gaps. These will be addressed during this conference. This area has few large randomized clinical trials comparing treatments or offering population-based conclusions. Without a forum, a large gap develops between the research and the day to day care of patients. The result is an uneven quality of care and missed opportunities for patients to gain access to new treatments and clinical trials. Sessions will detail the complexities of treating NS patients, the wide variations of patient reactions to treatment, prevention strategies, and the optimal management of care. Expert faculty will present the most current research issues and practice recommendations to support clinicians and providers in the care of patients with NS.

Target Audience
  • Physicians
  • Physician Assistants
  • Other allied healthcare professionals
  • Patient families

Course Directors                  Susan Massengill, MD

             Levine Children's Hospital

   Matthew Elliott, MD
    Metrolina Nephrology Associates
7:30 – 7:55 AM Registration and Breakfast

8:00 – 8:10 AM Welcome and Introductions
8:10 – 8:55 AM

Therapeutic Apheresis: How Does this Tool Work and When Do I Pull It Out of the Toolbox?
MJ Barchman, MD, FACP, FASN
East Carolina University
8:55 – 9:40 AM At the conclusion of the activity, participants will be better able to:
Outline therapeutic apheresis to improve patient outcomes.

Pediatric Nephrotic Syndrome: Forward Motion
Susan Massengill, MD
Levine Children’s Hospital
At the conclusion of the activity, participants will be better able to:
- Explain developments on Nephrotic Syndrome (NS) research in
        pediatric patients.

9:40 – 10:25 AM

Ethics of Renal Transplant
Benjamin Hippen, MD, FASN, FAST
University of North Carolina, Chapel Hill
At the conclusion of the activity, participants will be better able to:
- Discuss APOL-1 screening in renal transplant cases and its
        ethical implications. 
10:25 – 10:35 AM                 Refreshment Break

10:35 – 11:20 AM

The Role of Complement in the Nephrotic Syndrome
Carla Nester, MD, MSA
University of Iowa
At the conclusion of the activity, participants will be better able to:
   - Explain the complement system and how it interacts with NS.

11:20 AM – 12:05 PM


Recurrent Glomerular Disease in Renal Transplant
Karin True, MD
University of North Carolina
At the conclusion of the activity, participants will be better able to:
     - Articulate the importance of recurrent glomerular disease in
        renal transplant patients.

12:05 – 1:45 PM
*Special breakout session for patient families over lunch.

1:45 – 2:30 PM

Novel Therapies for NS
Debbie Gipson, MD, MS
University of Michigan
NephCure Accelerating Cures Institute (NACI)

2:30 – 3:15 PM
At the conclusion of the activity, participants will be better able to:
   - Detail the latest therapies for NS.

Genetic Risk Factors for Childhood Nephrotic Syndrome and Response to Therapy
Rasheed Gbadegesin, MBBS, MD
Duke University
At the conclusion of the activity, participants will be better able to:
   - Explain the epidemiology of childhood NS.
3:15 – 4:00 PM

APL01-Associated Nephropathy: Pathology, Mechanisms, and Clinical Utility
Barry Freedman, MD, FACP
Wake Forest School of Medicine
At the conclusion of the activity, participants will be better able to:
- Recall the importance of genetic factors in NS. 

4:00 PM                                     Closing Remarks

Planning Committee

Susan Massengill, MD
Levine Children's Hospital

Matthew Elliott, MD
Metrolina Nephrology Associates

Lauren Lee
NephCure Kidney International

Rebecca Cook
NephCure Kidney International

Nathalie Harden
National Kidney Foundation

Accreditation/Designation of Credit Information

This activity has been planned and implemented by NephCure® Kidney International and The National Kidney Foundation. The National Kidney Foundation is accredited by the American Nurses Credentialing Center (ANCC), the Accreditation Council for Pharmacy Education (ACPE), and the Accreditation Council for Continuing Medical Education (ACCME), to provide continuing education for the healthcare team.
The National Kidney Foundation designates this live activity for a maximum of 6.0 AMA PRA Category 1 Credits™.  Physicians should claim only the credit commensurate with the extent of their participation in the activity. 

Physician Assistants
AAPA accepts certificates of participation for educational activities certified for AMA PRA Category 1 Credit(s)™ from organizations accredited by ACCME or a recognized state medical society. Physician assistants may receive a maximum of 6.0 hours of Category I credit for completing this program.

Declaration of Disclosure
It is the policy of the National Kidney Foundation (NKF) to ensure balance, independence, objectivity, and scientific rigor in all CME/CE activities. Any individual who has control over CME/CE content is required to disclose to learners prior to the activity any relevant financial relationship(s) they may have with commercial interests supporting this activity or whose products or devices are discussed in this activity.

If, on the basis of information disclosed, a perceived conflict exists, resolution will be achieved based on NKF's Disclosure and Conflict of Interest Policy.

Unlabeled/Investigational Use 
During their presentations, faculty may discuss an unlabeled use or an investigational use not approved for a commercial product. Each faculty member is required to disclose this information to the audience when referring to an unlabeled or investigational use.

The faculty and National Kidney Foundation (NKF) do not recommend the use of any pharmaceutical, diagnostic test, or device outside of the labeled indications as approved by the FDA. Please refer to the official prescribing information for each product for approved indications, contraindications, and warnings.

Information contained in this NKF educational resource is based upon current data available at the time of publication. Information is intended to help clinicians become aware of new scientific findings and developments. This NKF educational resource is not intended to set out a preferred standard of care and should not be construed as one. Neither should the information be interpreted as prescribing an exclusive course of management.

Variations in practice will inevitably and appropriately occur when clinicians take into account the needs of individual patients, available resources, and limitations unique to an institution or type of practice. Every healthcare professional making use of information in this NKF educational resource is responsible for interpreting the data as it pertains to clinical decision making in each individual patient.

Acknowledgement of Sponsors
The National Kidney Foundation and NephCure Kidney International gratefully acknowledge Retrophin, Inc. as a sponsor of this activity.

Please contact Rebecca Cook at for more information about this event.

Registration Information

Patients and Families

For patients, patient parents as well as friends and family members of patients.


Patients and Families #@ID1@


For nephrologists and other MDs.


Physicians #@ID1@

Industry Professionals

For pharmaceutical representatives.


Industry Professionals #@ID1@

Other Allied Health Professionals

For nurse practitioners, registered nurses, socials workers, researchers, dietitians, and other allied healthcare professionals.


Other Allied Health Professionals #@ID1@

Residents and Students

For residents, fellows, and students.


Residents and Students #@ID1@


For event speakers.


Speakers #@ID1@


For those holding an exhibitor table in the lobby of the event.


Your Information

Event Details

October 06, 2017

Time 7:30 AM