Welcome to TeamNoraBean's team Page

TeamNoraBean

TeamNoraBean

Nora’s story started in January 2017 at the age of 3 when we noticed that she would wake up with significant swelling, primarily around her eyes. This would improve throughout the day so her doctors initially suspected allergies. After no improvements and monitoring the situation, tests were done which confirmed the diagnosis of Nephrotic Syndrome. She started steroid treatment immediately, after no response a biopsy was scheduled that April to check for FSGS. The biopsy confirmed the FSGS diagnosis which showed permanent scarring to her kidneys at the age of 3. Shortly after the diagnosis she started immunosuppressant therapy and began taking Tacrolimus. This medication helped but did not get her to a remission so an ACE inhibitor was added. The combination of drugs pushed Nora into a partial remission, which is significant with FSGS as any improvement slows down the scarring tremendously.

NephCure Kidney International (NKI) is the only organization committed exclusively to supporting research seeking the cause and cure of the debilitating chronic kidney disease, FSGS, as well as improved treatment options for patients. FSGS is a condition that affects the tiny filtering mechanisms in the kidneys. FSGS attacks the filters leaving permanent scarring often time requiring dialysis or transplant. The cause of FSGS is not known, it can affect anyone, and there is no cure. FSGS is a leading cause of kidney failure in children.

As of February 2018, Nora has reached her first remission and overall is stable. We are taking each day as they come and hope to enjoy as many good days as possible. NephCure gives us hope that one day there will be better treatment options or even a cure so Nora will remain stable and never need dialysis or transplant.

Nora will never know life without FSGS but this hasn’t stopped her yet and she remains a happy little girl. She enjoys dancing, singing and playing with her big sister. She can’t wait to take guitar lessons. She is full of smiles and loves turning anything she sees into a stage to dance and perform. She currently hopes to become a doctor (both for people and pets) and a police officer one day.

Together, we are leading the charge against kidney disease FSGS and Nephrotic Syndrome. NephCure is funding the best and brightest researchers, educating patient families across the globe and partnering with pharmaceutical companies to find a cure! Together, we can make a difference.

Will you please join us in this fight by making a donation today?

Thank you for visiting. This cause is very dear to our team, and we appreciate all the support we can get! Together we can make a difference! - TeamNoraBean

Cheryl LaBanco
  • Nora LaBanco
  • Josephine LaBanco
$545.00
$505.00
Jill Poetz
  • Kristopher Poetz
  • Carter Poetz
  • Andrew Poetz
  • James Poetz
$100.00
$50.00
$25.00
$0.00

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$50.00
1. Linda Bartolomei
For a precious Angel... Nora. Aunt Linda.
$50.00
2. Jason Thomas
$100.00
3. William McGuinn
$100.00
4. Erin Henry
We're on team Nora Bean!
$15.00
5. Melinda Derrick
$100.00
6. Heather Wolf