Welcome to my page!
Brooklynn was diagnosed at age 5 in October 2017 with Nephrotic Syndrome. After doing the standard protocol of medications for this with NO response, we moved forward with a kidney biopsy and genetic testing. She had never exhibited any of the typical signs for the syndrome so it was an anomaly.
After all the test results we in she was diagnosed with a very rare genetic condition called NPHS2 which leads to FSGS and kidney failure.
We stopped all medications besides Lisinopril and monitor her levels monthly.
We changed nephrologist once we received her new diagnosis and now are under the care of Dr. Michael Somers out of Boston Children's.
Together, we are leading the charge against kidney disease FSGS and Nephrotic Syndrome. NephCure is funding the best and brightest researchers, educating patient families across the globe and partnering with pharmaceutical companies to find a cure! Together, we can make a difference.
Will you please join us in this fight by making a donation today?
Together we can make a difference! Best - Melissa