Nephrotic Syndrome Family Wellness Day

Nephrotic Syndrome Family Wellness Day
The Marina del Rey Hotel
13534 Bali Way
Marina del Rey, CA 90292
January 20, 2019
11:00 AM – 5:00 PM

This event is FREE for patients and their family and friends. We will provide free parking as well as lunch and snacks.

 To learn about other Research Rallies in 2019, visit
11:00 AM Registration
11:30 AM - 12:15 PM Welcome and Patient Stories
12:15 - 1:30 PM Lunch
1:30 – 2:10 PM Treatment Paths for Nephrotic Syndrome
Co-presentations by an adult and a pediatric nephrologist.

Dr. Elaine Kamil & Dr. Sharon Adler

-Group breakout for kids - Elizabeth Simone
2:10 - 3:00 PM Natural Medicine & Kidney Disease
Dr. Jenna Henderson

-Group exercise for kids -  Marc Coroneal
3:00 – 3:15 PM
Refreshment Break
3:15 – 4:00 PM Optimizing Care Panel - Nephrotic Syndrome, Beyond the Meds
-Mental Health Coach - Janet  Hasson
Managing Paperwork Chaos & Insurance Navigation - Saretta McDonough & Genneia James
-Making the most of your appointments - Dr. Elaine Kamil & Dr. Sharon Adler
-Naturopathic Doctor - Dr.  Jenna Henderson

4:00 – 5:00 PM Wellness Fair
-Integrative Medicine with a Naturopathic Doctor  - Dr. Jenna Henderson
-Personal trainer - Marc Coroneal
-The Painted Turtle
-Clinical Trials Near You

-NephCure Kidney Health Gateway
-NephCure Volunteer Table - Allison Kostiuk & Deb Pollock

Acknowledgement of Sponsors
NephCure Kidney International gratefully acknowledges Retrophin, Inc. as a sponsor of this activity.
QUESTIONS? Contact: Rebecca Cook at (610) 540-0186 ext. 20 or at for more information about this event.

Registration Information

Adult Patient

For adult patients.


Adult Patient #@ID1@

Patient Parent

For parents of Nephrotic Syndrome patients.


Patient Parent #@ID1@

Patient caregiver

For patient caregivers that are not patient parents.




Child #@ID1@

Healthcare professional

For nephrologists, physicians, nurse practitioners, registered nurses, physicians assistants, socials workers, researchers, dietitians, and other allied healthcare professionals.


Healthcare professional #@ID1@


For event speakers.

Total: $0.00

Your Information

Event Details

January 20, 2019

Time 11:00 AM
The Marina del Rey Hotel: 13534 Bali Way, Marina del Rey, CA 90292