
Nephrotic Syndrome Family Wellness Day
AGENDA
Nephrotic Syndrome Family Wellness Day
The Marina del Rey Hotel
13534 Bali Way
Marina del Rey, CA 90292
January 20, 2019
11:00 AM – 5:00 PM
January 20, 2019
11:00 AM – 5:00 PM
This event is FREE for patients and their family and friends. We will provide free parking as well as lunch and snacks.
To learn about other Research Rallies in 2019, visit nephcure.org/researchrally
Agenda | ||
11:00 AM | Registration | |
11:30 AM - 12:15 PM | Welcome and Patient Stories | |
12:15 - 1:30 PM | Lunch | |
1:30 – 2:10 PM | Treatment Paths for Nephrotic Syndrome Co-presentations by an adult and a pediatric nephrologist. Dr. Elaine Kamil & Dr. Sharon Adler -Group breakout for kids - Elizabeth Simone |
|
2:10 - 3:00 PM | Natural Medicine & Kidney Disease Dr. Jenna Henderson -Group exercise for kids - Marc Coroneal |
|
3:00 – 3:15 PM |
Refreshment Break | |
3:15 – 4:00 PM | Optimizing Care Panel - Nephrotic Syndrome, Beyond the Meds -Mental Health Coach - Janet Hasson -Managing Paperwork Chaos & Insurance Navigation - Saretta McDonough & Genneia James -Making the most of your appointments - Dr. Elaine Kamil & Dr. Sharon Adler -Naturopathic Doctor - Dr. Jenna Henderson |
|
4:00 – 5:00 PM | Wellness Fair -Integrative Medicine with a Naturopathic Doctor - Dr. Jenna Henderson -Personal trainer - Marc Coroneal -The Painted Turtle -Clinical Trials Near You -NephCure Kidney Health Gateway -NephCure Volunteer Table - Allison Kostiuk & Deb Pollock |
Acknowledgement of Sponsors
NephCure Kidney International gratefully acknowledges Retrophin, Inc. as a sponsor of this activity.
QUESTIONS? Contact: Rebecca Cook at (610) 540-0186 ext. 20 or at rcook@nephcure.org for more information about this event.
.png)
