Thank you for visiting. This cause is very dear to me, and I'll appreciate all the support We can get.
We do this walk in support of our four year old (soon to be five) daughter who was diagnosed in November 2019. This walk and any donations is to not only raise awareness of this rare disease but help gain funds to find why this happens and how to make it better.
Any and all donations and pledges are welcome for our team.
Let’s find a cure!