Our team, Alyssa Strong, walks for Alyssa. A nine year old girl who is battling treatment resistant FSGS. Since her diagnosis in March of 2016, Alyssa has not responded to anything, she has tried steriods, tacrolimus, 2 infusions of rituximab, losartan, enalaphril and a clinical trial of lipidpheresis with no remission. She is currently back doing lipidpheresis and only some of her proteinuria has lowered, still no remission.
Alyssa will be soon listed on the transplant list because a kidney transplant is in her near future.
Please donate. Donations go towards finding better treatments and a cure!
Please walk with us. Only together can we FIGHT FSGS!
Together, we can make a difference!