Welcome to Team Little Milk Monster's Page

Team Zane

Team Zane

Hi Family & Friends!

We're taking part in our first ever LA NephCure Walk on April 7 in Santa Monica. This event raises awareness and funding for NephCure Kidney International, the only non-profit foundation focused on finding a cure for a rare kidney/auto-immune disease called Nephrotic Syndrome/FSGS - the condition that our 2.5 year old son Zane lives with every day.

Zane wasn't born with this condition & we don't know the cause. Not long after he turned 1, he started swelling up so badly that his eyes were swollen shut. It wasn't a simple allergy, but something more serious. A quick blood & urine test indicated that he was losing important proteins through his urine. His kidneys weren't filtering properly & his initial diagnosis was Nephrotic Syndrome. We learned that the kidneys started spontaneously scarring themselves & without treatment to get into remission quickly, the scarring will cause the kidneys will eventually fail, which leads to dialysis & kidney transplant(s).

Unfortunately, the aggressive medications didn't work for Zane for the first year. After multiple medications, numerous hospital admissions, and countless ER visits, his diagnosis changed to a more severe type of nephrotic syndrome called FSGS - a rare version of the already rare nephrotic syndrome. And if he does gets a kidney transplant, there's a 50% chance that the new kidney will develop the disease again. There is no cure to this awful disease.

We are grateful to our family & friends have adjusted their lives to support us. Even people we don't know have been praying for Zane. And right now, it seems to have made a difference. To the surprise of even Zane's kidney doctors at CHLA - Zane miraculously went into remission about 3 months ago! We are for grateful for this blessing and thank everyone for their support, thoughts, & prayers.

This is a lifelong chronic condition for Zane. There's currently NO CURE for nephrotic syndrome/FSGS. Remission just means that the lifespan of his kidney is extended for the moment, but he can fall out of remission at any time unexpectedly & then, his kidneys will resume scarring themselves. He takes medicine daily, goes to the labs to draw blood monthly now, adheres to a special diet, and participates in events like the LA NephCure Walk. Despite this all, this kid always has a smile on his face.

We'd like to invite you to JOIN OUR TEAM to walk with us and/or DONATE to support us in finding a cure for nephrotic syndrome/FSGS. Will you please join us in this fight by making a donation today?

Together we can make a difference!

- Team Little Milk Monster (aka Zane)

p.s. If you'd like to join our team at the 2019 NephCure LA Walk on April 7th, please see more details below: give.nephcure.org/LosAngeles/Static/Event-Info

Comments

$3,725
raised of $2,500 goal
 

15 Participants

recruited
Join Our Team

Recent Donations

$150.00
1. Jina Kim
We are so happy Zane is doing well!! We think of you often. :)
$25.00
2. Nilita Pagtalunan
$50.00
3. Lino Cabison
$50.00
4. Lawrence Browning
$100.00
5. Jeffrey Cushler
Prayers to you Karlene and Mike, Cush
6. Janice Medina

Thank you to our sponsors!


Bronze Sponsor




National Sponsor






Fundraising Tools

Event Flyer

Walker Welcome Kit

Sponsorship Packet

In-Kind Donation Form