Welcome to The Fighting Kidneys

The Fighting Kidneys

The Fighting Kidneys

My name is Van Remenar and I am a pretty ordinary kid except for one thing. I, like many boys my age, participate in Boy Scouts, several school clubs, and lacrosse, but what sets me apart is I have a very rare disease called Nephrotic Syndrome. Nephrotic Syndrome is a disease where my body loses too much protein through my kidneys and when this happens, I am at risk for life-threatening infections, stoke, and heart failure. I was diagnosed with this disease at 8 years old and at 14, I’m still fighting Nephrotic Syndrome. When I first got the disease, I was very sick spending several weeks in the hospital. I had to undergo a kidney biopsy, switch to a gluten and dairy free diet, and take several medications. While on medications, I gained 20 extra pounds of weight and swelled in my face, feet, and ankles. I was on medications for 18 months before going into remission. Luckily, I have been heathy in the past 5 years, only having to go on medicine for a total of 8 weeks during that time. This is not the case for many other children, some have to have several surgeries and even a kidney transplant, spending holidays and birthdays in the hospital.
Since I am very fortunate to be healthy at this point, it is important to me to find a cure not only for myself, but for other children with Nephrotic Syndrome. To raise money and awareness, I participate in runs and have developed my own team. I have run the 10k for the past 5 years and this will be my 6th year participating. My team, the Fighting Kidneys, have raised over $40,000 the past several years to donate to NephCure, a non-profit organization raising awareness and supporting research for better treatments and ultimately a cure. My hope is to help raise much more money and awareness. You can get involved by joining my team and running in The Orange Classic in the 5K or 10K on June 3rd, 2018 and/or donate to my team through my web page. This is very important to me because with your help, together we can find a cure and end Nephrotic Syndrome.

How Can You Help?
• Walk or Run with me:
1. Register for the race here: classic10k.com/registration.html
2. Then, join my fundraising team on this page:
Above at Join our team

*Set up your own fundraising page to recruit family and friends to sponsor you through their donations.

Thank you for helping me finding a cure


raised of $10,000 goal

18 Participants

Join Our Team

Recent Donations

1. Crystal Run Healthcare LLP
2. Mary Morris
Continue the fight,Van.
3. Monika Quilatan
4. Grandma And Grandpa O'Neill
God Bless You Eleanor!!??
5. Grandma And Grandpa Reilly
We are so proud of you! We love you!
6. John Reilly
So proud of you Elle! Good luck, We love you