Van Remenar's The Fighting Kidneys

The Fighting Kidneys

Join my team, The Fighting Kidneys,
to run or walk at the 5K or 10K on June 4, 2017!

My name is Van Remenar and I am a pretty ordinary kid except for one thing. I participate in Boy Scouts, football, and lacrosse and am a member of the National Junior Honor Society, but what makes me different is I have a very rare disease called Nephrotic Syndrome. Nephrotic Syndrome is a disease where my body loses too much protein through my kidneys. I was diagnosed with this disease at 8 years old and at 13, I’m still fighting Nephrotic Syndrome. When I first got the disease, I was very sick, I spent several weeks in the hospital. I had to undergo a kidney biopsy, switch to a gluten and dairy free diet, and took several medications. While on medications, I gained 20 extra pounds of weight and swelled in my face, feet, and ankles. I was on medications for 18 months before going into remission. Luckily, I have been heathy in the past 3 years, only having to go on medicine for a total of 8 weeks during that time. This is not the case for many other children. Some need to have several surgeries and even a kidney transplant, spending holidays and birthdays in the hospital.

Since I am very fortunate to be healthy and successful, it is important to me to find a cure not only for myself, but for other children with Nephrotic Syndrome. To raise money and awareness, I participate in runs and have developed my own team. I have run the 10k in the Orange Classic for the past four years and this will be my fifth year participating. My team, the Fighting Kidneys, and I have raised over $33,000 over the past several years to donate to NephCure, a non-profit organization raising awareness and supporting research for better treatments and ultimately a cure.

We hope to continue to raise more money and awareness for Nephrotic Syndrome, so please donate today! Also, I would love for you to join my team. This is very important to me because with your help, together we can find a cure and end Nephrotic Syndrome.

How Can You Help?

1. Donate now

2. Walk or Run with me:
a. Register for the race here:
b. Then, join my fundraising team below at Join My Team
*Set up your own fundraising page to recruit family and friends to sponsor you through their donations.

THANK YOU VERY MUCH! Let us make this this best year yet!

Mark Bele
  • Aidan Bele
  • Ethan Bele
  • Kayla Bele
  • Phoebe Bele
  • Suzanne Bele
Thomas Bekele-Arcuri
  • Zewditu Bekele-Arcuri
  • Behailu Bekele-Arcuri
  • Abigiya Bekele-Arcuri


raised of $10,000 goal

28 Participants

Join Our Team

Recent Donations

1. Chris & Mingjie Antoni
All the Best to you and your family Van!!!
2. Crystal Run Healthcare LLP
3. Amy Frisch
4. Patrick Cullen
5. Lisa Joyce
6. Haskin Family
Go Fighting Kidneys! -The Haskin Family