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Welcome to Team Ivy Strong

Tina Maldeney

Tina Maldeney

Ivy's story:

Ivy was diagnosed with Nephrotic Syndrome Thanksgiving 2015 at just 2 years old. Her face had been a little puffy and we brushed it off to the midwestern allergies and harvest. After a week we decided to take her to her family doctor as her uncle also had Nephrotic Syndrome when he was the same age, and her face swelling started to look the same as his did.
Ivy had her first visit to Riley's children's hospital in December 2015 and was started on prednisone. Ivy responded but not totally to just the steroids.

February 2016 just a few weeks before her 3rd birthday Ivy underwent a kidney biopsy. She was found to have minimal change nephrotic syndrome. They claim this is the "one you would want" as it's treatable with medications.
Since the steroids were not enough to put Ivy in full remission we added a second line medication with the steroids.

This year marks 6 years since Ivy was diagnosed with Nephrotic Syndrome and it has not been easy for her little self. She is still on high doses of prednisone and several other medications as well as a few new diagnoses along the way in relation to her Nephrotic Syndrome.

She continues to be brave and strong through everything that is thrown at her though!

Ivy is now 8 years old and the most caring and kind soul you will ever meet. She dreams to be a nurse when she's older to help other people.

Thank you for visiting. This cause is very dear to me, and I appreciate all the support I can get! As a member of this team, we are each playing a part in helping NephCure Kidney International save kidneys and save lives. Together, we are leading the fight against kidney diseases such as FSGS and Nephrotic Syndrome.

NephCure is funding the best and brightest researchers, educating patient families across the globe, and partnering with pharmaceutical companies to find a cure! Will you please join us in this fight by making a donation today? Together we can make a difference!

Best - Tina and Ivy

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